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Testimonials

"A Letter from Victoria:
Hello my name is Victoria; I just wanted to say Thanks. My daughter was born May 8th 2009 she was born with Gastroschsis, that's a condition where her intestines are born on the outside of her body. She was shipped straight to Riley after birth. Riley is an amazing hospital I never realized it until we were there. My daughter (Kimberly) was there for almost 4 weeks. Each day with my new born there was tough, but I've learned a lot of things with that stay. There were so many more people with children worse off than ours, I had learned to appreciate everything I have, and when I'm down and think it can't get any worse to just look around and see how I have actually got it pretty good. A couple of days before Kim was to be released from the hospital, I heard of the Miracle Ride and I honestly thought it was no big deal, but I went anyway. I thought all it was going to be was a lot of loud motorcycles driving around and that's it. When I went outside and I saw all of the motorcycles driving and honking and the people waving to us, I just started crying. It really hit me. All of those people were doing this for us, my child, all of the children there a Riley. With each motorcycle that went around I became more emotional, it was so beautiful, I would have never imagined how amazing that was and that feeling. I couldn't believe how many people there was out there on the motorcycles the line was almost endless. It touched me so much to see that and still just thinking of that day makes me tear up. If it weren't for those people it would be a lot different for the kids at Riley. I wish there was a way to thank each and every one of them, and to really describe what it was like that day; but I would like to thank you guys for organizing this wonderful fundraiser, I meant so much to me and I'm sure there are so many people just as thankful as I am. Thank you so much"

-Victoria F.


"Yea this is great.. When Kristine was diagnosed with CVS (Cyclic Vomiting Syndrome). for so long she suffered until we went to Riley's ...we learned of so many children who have went undiagnosed... and learned without treatment for many children it had become life threatening. thank you Riley"

-Sherrie R.


Hi! My name is Danielle and I am a mother who lost her son to cancer. My son, Brandon, was born a healthy and happy little boy. At eight years of age he was diagnosed with Wilm’s tumor, a kidney cancer in children. He was immediately taken to Riley’s in Indianapolis where he was very well taken care of. He had a wonderful doctor named Dr. Fallon. He was diagnosed at stage 4, but we were very optimistic. He underwent a kidney removal, radiation, and a year and a half of chemo. Everyone we encountered at Riley’s was wonderful! They answered every question we had because, as you can imagine, we had many. They were very patient and really showed wonderful care to my son. In July of 2008, he went into remission and was able to return to school. However, at his next check-up they noticed a mass and, after running more tests, determined it had return. He was taken out of school again and began more chemo. Throughout my son’s fight of 2 years, he always remained positive and had nothing but wonderful things to say about Riley’s. Although he hated going because he knew what was in store, he loved the nurses and would play games and prank them all the time. He was such a kidder! On March 13, 2009, he was airlifted to Riley’s after a severely high fever and passed the next day. It was devastating for my family, but we know he is in a better place and looking down on all of us. Riley’s was wonderful throughout everything and I have nothing but great things to say about them. The doctor’s and nurses were wonderful and made it more bearable each visit for son. One day, I would love to be part of the Riley’s team. They are a very compassionate and wonderful group of people!

-Danielle W.


Keegan Thomas Chupp was born 6 weeks premature at 7 lbs 10.8 oz on September 23, 2009. Right away they knew something wasn’t quite right. We were followed our entire pregnancy by a Perinatologist. During a routine ultrasound they found an extra gallbladder or Cysts on the liver. They are still unsure what exactly it is. He was born with extra fingers and an extra toe. His head was much larger than other babies his age and they began running tests. Turns out he had a stroke in utero and had blood on his brain. He stayed in the NICU for 2 weeks and upon his release we were scheduled to see a doctor at Riley by the end of the week. We saw a Neruo Genetists named Dr. Laurence Walsh who believes our baby boy has an overgrowth syndrome. To be specific it is called Simpson-Golobi-Behmel. Only 130 worldwide are suspected of having this syndrome. One of the main complications of Simpson is tumors in children involving the abdomen. Because of this, Keegan has to have quarterly blood draws and CT’s to watch for tumors. He is in physical therapy once a week because of his prematurity and developmental delays. He is unable to hold his head up at 6 and half months of age but we are working on this and other milestones that have not been reached.

A CT done at the request of his Pediatrician because of excessive growth revealed fluid collecting on his brain. We are scheduled to see Dr. Laurie Ackerman who is a neurosurgeon at Riley. Most likely he will need a shunt implanted in his brain to drain the fluid that is not draining itself.

Any Assistance you can provide, this family needs our help:

My son Anthony is a miracle to say the least. When I was pregnant with him I had that "woman's intuition" that something was not right with my pregnancy so I asked the doctor to be induced at 39 weeks. I went in to the hospital and delivered a 7lbs. 7oz. baby boy who turned blue the first second that the umbilical cord was cut. Anthony had holes in his lungs and his kidneys were distended. He was rushed from the hospital that I had him to Riley's Children's Hospital and put on an artificial lung machine called an ECMO machine. He was put into a medical coma to give his body the rest that it needed while the doctors worked on him. My baby was given a week to live. He was diagnosed with Posterior Urethral Valves which is a condition where the urine flow is opposite of what it should be. He made little to no urine and his kidneys were so chronically damaged that he was not expected to live. For three days the doctors tried to get me to take my son off of the ECMO machine and the breathing machine and let him die. They even told me that I could hold him as he passed away if it would make me feel better. For three nights I prayed on the information that they gave me and on the fourth day I let them take him off of the ECMO machine but keep him on the breathing machine. The nurse that was watching over him the night that he was expected to pass left and went on vacation sure that when she returned he would have passed already. One day went, he was still alive, then the second day came and his health started to do a complete 360 degrees. Still chronically ill, he was weaned off of the ventilator. My son is almost two years old. His life is a testimony to people that sometimes you cannot go off of Man's word alone. Sometimes the Lord has plans for you that even Man cannot fathom. When Anthony's nurse returned from vacation she was in tears, because she was looking at a miracle.He is still here against all odds, and I knew he would be. His paper work said that I was oblivious to his condition and that I did not comprehend the extent of his condition well. They thought that I was crazy for believing that my baby would get better. Looking back on the situation I know that I made the right choice. If I didn't believe in my God and the promises that he makes for believers then who would? I almost gave up on Anthony. He was fighting so hard to stay alive and I remember while he was suppose to be in this "deep sleep" he squeezed my finger. That was his way of letting me know that he understood and that he was fighting as hard as I believed in him. His story is truly one for the books and should be a testimony to never give up, even when it looks bad. Walk by faith and not by sight.
His is currently a diaylis patient at Riley and he receives therapy twice a week. Physically he is delayed but mentally he is just as bright as other toddlers his age. His spirit is as bright as the spirit of a perfectly healthy child and I believe that is why he continues to progress. With the help of his physical therapist Melissa Maxwell, he is now crawling and getting into things that he should not be just like I prayed for. If you would have looked at him a year ago, you would have thought that he would never sit up on his own, crawl, or do anything like normal children. The world is once again surprised. I am very grateful for Melissa, she is very patient and she knows what she is doing. His story is not yet finished but I look forward to each day with him because he is meant to be here and he was made just for me.



Thomas Chupp was born 6 weeks premature at 7 lbs 10.8 oz on September 23, 2009. Right away they knew something wasn’t quite right. We were followed our entire pregnancy by a Perinatologist. During a routine ultrasound they found an extra gallbladder or Cysts on the liver. They are still unsure what exactly it is. He was born with extra fingers and an extra toe. His head was much larger than other babies his age and they began running tests. Turns out he had a stroke in utero and had blood on his brain. He stayed in the NICU for 2 weeks and upon his release we were scheduled to see a doctor at Riley by the end of the week. We saw a Neruo Genetists named Dr. Laurence Walsh who believes our baby boy has an overgrowth syndrome. To be specific it is called Simpson-Golobi-Behmel. Only 130 worldwide are suspected of having this syndrome. One of the main complications of Simpson is tumors in children involving the abdomen. Because of this, Keegan has to have quarterly blood draws and CT’s to watch for tumors. He is in physical therapy once a week because of his prematurity and developmental delays. He is unable to hold his head up at 6 and half months of age but we are working on this and other milestones that have not been reached.

A CT done at the request of his Pediatrician because of excessive growth revealed fluid collecting on his brain. We are scheduled to see Dr. Laurie Ackerman who is a neurosurgeon at Riley. Most likely he will need a shunt implanted in his brain to drain the fluid that is not draining itself.

Please send checks attention: Beth Chupp
445 Cross Pointe Boulevard Suite 120 | Evansville, IN 47715-4011
Office: (812) 479-9902
Beth Chupp

-Beth

Macey was born 9 weeks premature on May 12, 2003. She weighed only 2.6lbs but was able to breath on her own and was considerably healthy. In 2006 her Pediatrician diagnosed her with a urinary tract infection (UTI) and noticed dimpling on her lower back. He referred us to a urologist at Rileys Childrens Hospital. An MRI showed lipoma of the terminal filum which means the tissue that connects the spinal cord to the backbone thickens and hardens causing it to push down on the spinal cord. She was also diagnosed with bilateral vesicoureteral(VUR) reflux and dyssynergia. VUR is abnormal movement of urine from the bladder into the ureters and dyssynergia is contraction of the urethral sphincter muscle at the same time the detrusor muscle of the bladder is contracting which causes in obstruction of urinary outflow. Basically, urine flows into the urethra but is stopped and pushed back in the bladder. From there it is pushed back into the ureters and finally is pushed back to the kidneys. VUR severity is categorized by grades with 1 being least severe and 5 being the worst. Macey’s VUR is a grade 5. She has developed bladder diverticulum which are sacs in the bladder wall caused by chronic UTI’s and bladder obstruction. She has had one surgery to remove the spinal lipoma. She takes an array of medications to prevent infections and help with bladder spasms. At this point, we haven’t been able to keep her infection free for quite some time. The infected urine is flowing into the kidneys and causing some slight kidney damage. The doctors and nurses at Rileys have been great to her and our family. Even knowing the unpleasant testing she is going to have each time we go, she still looks forward to it. They do an amazing job of making sure the children are entertained and not intimidated by a hospital setting. Our family can’t thank Rileys Hospital enough for what they have done and continue to do to help Macey.